Today I responded to a comment in a public forum from a man who has has alopecia universalis – no body hair at all – since he was thirteen.
He is in my Baby Boomer generation, and there was little help available to cope with alopecia when he was a child. This wonderful man shared his hurt and his pain over the bullying he experienced both as a child and an adult. It took courage to share. My heart was full of empathy and compassion for him, and I could not leave without responding. Here’s what I wrote:
You are so right about growing up and the rest of the world staying immature and ignorant in areas in which they have no experience. I too have experienced the negativity, but I didn’t have to deal with it as an adolescent like you did.
There was no understanding of alopecia then and zero help for kids to cope. And that sucks. Today things are changing – way too slowly to be sure, but changing. And a lot of that has to do with bald men and women stepping out of the shadows, openly accepting their hair loss, reclaiming their joy and sharing it with others.
I’m 64, bald as an egg and loving every minute of it. It was wigs I hated. And the feeling I was no longer worthy to be seen by society. It was worrying more about taking care of other people’s feelings than my own feelings, comfort and personal freedom that left bitterness in my heart.Continue Reading